陕西省渐冻人关爱互助协会被国际ALS联盟接受成为正式会员，并且受邀参加2015年12月在美国奥兰多举行的国际ALS联盟年会，并就陕西渐冻人关爱互助协会的工作及发展策略进行陈述。今年年会的主题是：让世界免于ALS/MND（a world free of ALS/MND）。我们将努力从国际ALS联盟获得更多资源、经验和发展项目，以回馈我们的陕西患者。这将是陕西渐冻人事业的重大一步，将惠及所有的患友和家属。希望陕西的ALS患友和我们及时联系,我们将为您的诊断、治疗和家庭护理提供帮助。

协会联系人刘欢:18729356970

官方QQ群：146962152

协会网站：www.sxals.cn

运动神经元病专病门诊：西京医院神经内科门诊 冯国栋医师（周四下午）

陕西省渐冻人关爱互助协会热忱欢迎任何形式的捐赠及支持，具体捐赠途径如下：

银行转账：

单 位：陕西省渐冻人关爱互助协会
开户行：中国农业银行股份有限公司西安东元路支行
账 号：26120801040008647
 

邮局汇款：

地 址：西安市灞桥区矿山路368号
名 称：陕西省渐冻人关爱互助协会
邮政编码：710032
请在附言中注明捐赠用途。
 

联系方式：

电 话：029-86796751/18729356970
传 真：029-86796711
通讯地址：西安市灞桥区矿山路368号
邮政编码：710032
电子邮箱：sxalsmch@163.com

On behalf of the Board of Directors of the International Alliance of ALS/MND Associations, we take great pleasure in welcoming the Shaanxi ALS Association as a Full Member of the International Alliance.

Each year, the International Alliance Annual Meeting is hosted by one of our members in their home country. In 2015, the Meeting will be held in Orlando, FL, USA, hosted by The ALS Association. We
hope you will join us there! Please visit our website for details about the meeting: www.alsmndalliance.org. While there, you can also learn about our many programmes and initiatives, all meant to support members and lead us toward our vision: a world free of ALS/MND.

The International Alliance could not function without the support and participation of its members. Our members’ ideas, resources and activities strengthen and enrich our global community, and their
subscription fees enable us to continue in our mission. Your commitment to our cause is vital and greatly appreciated!

So, once more, welcome to the Alliance. We look forward to the work we will do together for the benefit of our organisations, and ultimately for the benefit of people affected by ALS/MND—wherever they are in the world