观点一：ALS is a treatable disease even though it is notcurable
目前，ALS虽然不能治愈，但可以采取手段治疗它，并且必须要积极治疗，不可坐视不管。
观点二：It is important for an individual facing ALS tolook for hopeful aspects
米勒教授认为，保持乐观开朗的心情面对ALS非常重要。
观点三：We now have one drug, Rilutek, which slows theprogression of ALS,particularly if it is given early in the course of thedisease.The drug was initially tested in patients with relatively severe,advanced ALS, and only a few months of prolonged life was observed. Subsequentstudies in which the drug was started much earlier have shown more substantialbenefit. The drug is safe and well tolerated, although expensive. The search isunderway to find other drugs that, in combination with Rilutek, will reallyput the brakes on ALS.
力如太最早试验是用于严重的、晚期的ALS患者，看似对延长生命作用有限，但后续的研究表明：在疾病早期使用，患者获益明显。并且通过和其它可能药物联用，或更有效果。
观点四：Providing the very best standard of health caremanagement is essential for all patients with ALS
给予ALS患者高标准的照护管理至关重要。
观点五：In recent years, there has been an increasing interestin understanding the effects of ALS, and its potential treatments, not only onquantity of life (survival), but also quality of life。
ALS的治疗不单要关注生存周期的数量，还要提高生存质量。
观点六：Maintaining good nutrition is one of thegreatest challenges of living with ALS
努力保持好ALS患者的日常营养
观点七：Plan to maintain your usual weight.If you feelyou are overweight, do not diet to lose weight, because it may become
more difficult to eat later on.
有计划性的保持体重平衡，超重的患者千万不要通过节食来减轻，要通过均衡营养来平衡体重。
发表于 2015-12-31 09:48:36
发表于 2015-12-31 10:21:19
宝宝做不到
发表于 2015-12-31 12:02:21
